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Supports DocumentsTable of Contents
Academic ArticlesPerceptions of Primary Healthcare Services among People with Physical Disabilities: A 2-Part Report on the perceived quality of primary care received by Persons with Disabilities(MedGenMed Volume3, 2: 2001) Part 1 Access IssuesHTML FormatAbstractAccess to primary healthcare among people with physical disabilities has been a neglected research area in Canada. The authors sought to examine the extent of access to and satisfaction with primary healthcare services for people with physical disabilities living in Canada's largest metropolitan area -- the Toronto region. Although people who experienced more difficulties may have been more likely to respond to this survey, a significant proportion of people with physical disabilities feel they are experiencing difficulty accessing adequate and appropriate primary healthcare services. Possible solutions to some of the identified access barriers and areas where further research may be required are described. Part 2 Quality IssuesHTML FormatAbstractAccess to primary healthcare among people with physical disabilities has been a neglected research area in Canada. The authors sought to examine the extent of access to and satisfaction with primary healthcare services for people with physical disabilities living in Canada's largest metropolitan area -- the Toronto region. Although people who experienced more difficulties may have been more likely to respond to this survey, a significant proportion of people with physical disabilities feel they are experiencing difficulty accessing adequate and appropriate primary healthcare services. Possible solutions to some of the identified access barriers and areas where further research may be required are described. The Need to Belong: Rediscovering Maslow's Hierarchy of Needs(Paul H. Brookes Publishers, 1992) AbstractSegregated programs and classrooms have failed to teach students appropriate behaviour and skills. Environments where students model, learn, and practice inappropriate or meaningless behaviours have not been successful in preparing individuals for community life. This article challenges the validity of segregation as an educational practice and argues that a new paradigms need to be developed that incorporate a motivation to learn. The author uses Maslow’s hierarchy of needs to show that only when we are anchored in community do we develop self-esteem. Paying Customers Are Not Enough: The Dynamics of Individualized Funding(Responsive Systems Associates, 2001) AbstractThe author argues that simply converting people with disabilities from service receivers to customers under individualized funding will not resolve the issues inherent in the current system which black people with disabilities from being able to access the supports they need. Community capacity development and advocacy must also be developed to ensure that people with disabilities and their families will have access to the right configuration of supports. In order to create new possibilities for people with developmental disabilities and their allies to enjoy and contribute to community life, a growing number of people with disabilities and their families must make connections that will give them the knowledge and the courage to negotiate for the personally customized assistance they require. Integration: Being Realistic Isn't Realistic(Canadian Journal for Exceptional Children, Volume 1, 1, 1984) AbstractThis article discusses the reasoning behind segregating people with disabilities in schools. The author argues that it is more often defeatism than realism that leads administrators and educators to believe that a person with a disability cannot be integrated into schools. Self-Determination and Independent Support Brokerage: Creating Innovative Second-Level Supports(Mental Retardation Volume 41, 4, pp. 294–298) AbstractProposals have been made recently to increase opportunities and capacity for people disabilities to have greater self-determination in their lives. Individualized funding is an essential component of changes in supports and funding structures that can create real choice and control for people with disabilities. Support brokerage, though variously defined, is an important second-level support that provides people with disabilities an avenue to plan, manage, and monitor their direct supports. Founded on a broad range of values, support brokers work for people receiving support rather than support providers. Support brokerage has been implemented world-wide using a number of different models. Research is called for that explores the efficacy of support brokerage as one mechanism to enhance interdependence, community participation, and social engagement for people with disabilities. Such research must involve self-advocates and families as active, equal research partners. Articles from Disability and Research OrganizationsEmployers review of the Choices in Support for Independent Living. program(British Columbia Paraplegic Association, November 2006) AbstractThis document was complied in response to the British Columbia Ministry of Health.s review of the Choices in Support for Independent Living program. This BC program is defined by the ministry as a self-managed model of care where clients receive funds directly for the purchase of home support services.. The BC Paraplegic Association facilitated a dialogue among CSIL employers to identify the benefits and deficits of this program. The primary concerns raised by this study are:
A National Snapshot of Home Support from the Consumer Perspective Enabling People with Disabilities to Participate in Policy Analysis and Community Development(Winnipeg: Council of Canadians with Disabilities, 2005) AbstractA national study of home support (home care) policy and service that emphasized the perspectives of individuals with disabilities who require the service. This survey includes an analysis of the social, economic and ideological factors that influence home support policy. It is argued that a holistic approach to addressing policy issues related to disability supports is essential to realize a level and range of quality home support service that will enable people with disabilities to satisfy their basic life goals through self-direction, quality of life, and community participation. A Critical Analysis of the Ontario Disability Support Program Act and Social Citizenship Rights in Ontario(Dis-Abled Women’s Network Ontario) AbstractThis paper critically analyzes the ability of the Ontario Disability Support Program to protect the social citizenship rights of disabled persons aged 18 to 34 and argues that certain legislative factors prevent these individuals for actively participating in our society. After a critique of the work of T.H. Marshall and contemporary citizenship theorists, I propose that a new definition of social citizenship should be developed that recognizes that all citizens interact with society on varying levels and that socially sanctioned opportunities should be protected under this new definition so that all Ontarians are guaranteed the opportunity to be active social citizens. Denial By Design…The Ontario Disability Support Program(Income Security Advocacy Centre, 2003) AbstractThis paper documents the process for accessing Ontario’s Ontario Disability Support Program Act (ODSPA), intended to provide income and employment supports for people with disabilities. The report is an attempt to outline the most problematic aspects of the ODSP application and adjudication process and make recommendations for change. The focus is the "front end" procedural issues associated with ODSP, from the point where an individual first applies for disability benefits to where he/she is either denied or granted those benefits. Self-Managed Care and Individualized Funding: Not the Same Thing! CLC Unions Mobilizing for Disability Rights(Canadian Labour Congress, 2000) AbstractThis paper is intended to address the potentially thorny issue of a labour perspective on one increasingly popular alternative model of service delivery of self-managed care. The report looks primarily at the Self-Managed Care/Individualized Funding model of service delivery that is becoming increasingly popular in Canada. The paper is an attempt to reconcile the perspectives and rights of workers and people with disabilities in an area where their interests have often been seen as opposed. Dollars for Services, aka Individualized Funding(Caledon Institute of Social Policy, 1996) AbstractIndividualized funding is a method of financing that has been employed primarily to help people with disabilities purchase disability-related goods and services. However, the underlying principles can be applied more broadly to other areas, such as child care and training. The strengths of this financing arrangement are identified and include easing access to scarce services and allowing greater consumer control over their delivery. The limitations are also considered; the primary concern arises from the potential shift away from public investment in a high-quality service infrastructure to the support of individuals as 'free agents' in a 'marketplace' of services. Individualized Quality of Life Project: Final Evaluation Report(Roeher Institute, 2000) AbstractThis document reports the evaluation of the Individualized Quality of Life Project (IQOL) which was launched in 1997 by the Family Service Association of Toronto. This was the largest individualized funding initiative in Ontario for people with developmental disabilities and their families at the time. This evaluation found that with respect to enhancing self-determination, for the majority of participants, four inter-related aspects of self-determination were strengthened through the project including: the development of a vision for a person’s life as a valued member of their family and community; greater control in decision making about supports for individuals and families; greater recognition and value in personal relationships within their family and beyond; and significant development of personal skills. Community participation also increased for a significant majority of individuals as well as access to needed supports. The Time for a National Home Support and Home Care Act is Now(BC Coalition of People with Disabilities, 2004) AbstractThis document recounts the impacts that cuts on healthcare spending, along with deinsitutionalization without increased funding for homecare and community based supports has on the health and living conditions of people with disabilities, seniors and the chronically ill. The paper argues for a national Home Support and Homecare system that is governed by the same principles as the Canada Health Act: Universality, Comprehensiveness, Accessibility, Public Administration, and Portability. Access to Breast Cancer Screening Programs for Women with disabilities(Action des femmes handicapées de Montréal with the collaboration of l’Équipe Cancer de la Direction de santé publique-Montréal-Centre AbstractInaccessible health care facilities and medical equipment prevent women with disabilities from getting mammograms. Furthermore, health care providers do not encourage women with disabilities to get screened focusing instead on the medicalization of disability and not on the health conditions they face as women. Often, women with disabilities are denied services provided to women simply because these services are unintentionally geared to non-disabled women. The statistics show that in the area of breast cancer screening, women with disabilities are constantly under-served. The purpose of this research project was to evaluate the accessibility of the Québec based program, the Programme québecois de dépistage du cancer du sein (PQDCS) in Montréal for women with diverse disabilities. Moving Backwards: Canada’s State of Transportation Acessibility in an International Context, Final Report to the Council Of Canadians With DisabilitiesMoving Backwards: Canada's State of Transportation Accessibility in an International Context Final Report to the Council of Canadians With Disabilities AbstractThis study focuses on wheelchair access, and makes a comparative analysis of regulatory frameworks governing accessibility in the United States, the United Kingdom, the European Community and Australia. The report examines progress towards an ideal of full inclusion, examines the effectiveness of enforcement and identifies the potential for regression in the face of changing political and economic realities. Over the period of 1979 to 1993 Canada came to be recognized internationally as a world leader in transportation accessibility. However, the report argues that today accessibility standards, at least for modes of transportation within federal government's jurisdiction, are a thing of the past. This Report's primary recommendation is that Canada abandon any illusion that its regulatory system is functioning and adopt the American model to the fullest extent possible. Respite as Outcome: Plan it! Do it! Feel it!The Victorian Order of Nurses AbstractRespite is not a service but an outcome for caregivers, resulting from time off from caregiving responsibilities. Respite is one outcome. Caregiver satisfaction, service satisfaction, quality of life, maintaining physical and mental health, and increased caregiver knowledge are other outcomes. Respite should be a part of the menu of services available to individuals and families receiving home care services. The quality of the time away, not necessarily the quantity of time, matters to caregivers. Programs need to more rigorously evaluate the effectiveness of the services to reflect the caregiver respite outcomes, and determine for whom the outcomes are hindered or facilitated by the policies and procedures. Disability Information Sheet #7, "Supports and Services for Persons with Disabilities in Canada: Requirements and Gaps."”(Canadian Council on Social Development, 2005)
AbstractThis information sheet provides data on requirements for supports and services among Canadians with disabilities, as well as information on gaps in these supports and services. Information in this issue is based on a longer report entitled Supports and Services for Adults and Children. Supports and Services for Adults and Children Aged 5-14 with Disabilities in Canada: An Analysis of Data on Needs and GapsCommissioned by Federal-Provincial-Territorial Ministers Responsible for Social Services (CCSD, 2004) AbstractThe report outlines gaps between services provided and the needs of people with disabilities. The report attempts to provide a national picture of the availability of disability supports in Canada using data from the Participation and Activity Limitation Survey (PALS) 2001. The report is in two parts: one section covering seniors and adults and a second section covering children between the ages of five to fourteen to match the PALS survey groups. Disability Research Information Sheet #9(CCSD, 2005)
AbstractThe focus of this information sheet is on the health and well-being of persons with disabilities. It looks at self-rated health status, access to health care, and various supports for persons with disabilities, including social support, emotional support, affection, friendships and more. Moving In Unison Into Action: Towards a Policy Strategy for Improving Access to Disability Supports(Roeher Institute, 2002) AbstractThe findings of this study shed light on the conditions that would advance the objectives outlined in In Unison. The research set out to identify key transitions that children and adults with disabilities, and their families, seek to make or that they undergo in any event. It explores how such transitions are affected by the presence and absence of disability supports, accounts for the difficulties experienced by persons and families in securing needed supports, and points towards a policy strategy to address those issues. The Disability Supports Feasibility Study- Final ReportRoeher Institute AbstractThe final report of the Disability Supports Feasibility Study (DSFS), a small scale project that tested the feasibility of allowing people with disabilities to choose their own disability and employment supports within an agreed-upon framework. Participants were provided with a list of eligible goods and services that were both disability supports and employment supports. Participants, rather than administrators, had the final say on which of the eligible supports were purchased, where they were purchased, and when they were purchased (up to a maximum dollar value in a single month). The report discusses the project's findings. In Synchrony: Looking at Disability Supports from a Progressive Disability PerspectiveMuscular Dystrophy Association of Canada and Partners AbstractCanadians have acknowledged, at all levels, the importance and value of the active contribution of people with disabilities as full citizens in our communities. The challenge lies in how this vision is translated as governments, the voluntary, and private sectors provide services and supports to people with disabilities. Too often, government supports and services are provided through structures and programs that assume the disability to be of a chronic or permanent nature. This article, by a partnership of Voluntary Health Organizations provides services to people with degenerative or progressive disabilities shares a commitment to improving services available to Canadians living with progressive diseases. Portrait des besoins et des services : Les personnes ayant des incapacités dans la région de l'Estrie (Laboratoire de recherche sur les pratiques et les politiques sociales (LAREPPS) et Université du Québec à Montréal, 2004)
AbstractThis french document draws a picture of the supply and demand of public and community services available for the disabled people in the Eastern Townships in Quebec's province. This regional overview makes out a list of its strenghts and weaknesses in the incapacity domain. Portrait des besoins et des services : Les personnes ayant des incapacités dans la région du Centre-du-Québec (Laboratoire de recherche sur les pratiques et les politiques sociales (LAREPPS) et Université du Québec à Montréal, 2004)
AbstractThis french document draws a picture of the supply and demand of public and community services available for the disabled people in the Centre-du-Quebec in Quebec's province. This regional overview makes out a list of its strenghts and weaknesses in the incapacity domain. Portrait des besoins et des services : Les personnes ayant des incapacités dans la région de la Mauricie (Laboratoire de recherche sur les pratiques et les politiques sociales (LAREPPS) et Université du Québec à Montréal, 2004)
AbstractThis french document draws a picture of the supply and demand of public and community services available for the disabled people in Mauricie in Quebec's province. This regional overview makes out a list of its strenghts and weaknesses in the incapacity domain. Portrait des besoins et des services : Les personnes ayant des incapacités dans la région de Laval (Laboratoire de recherche sur les pratiques et les politiques sociales (LAREPPS) et Université du Québec à Montréal, 2004)
AbstractThis french document draws a picture of the supply and demand of public and community services available for the disabled people in Laval in Quebec's province. This regional overview makes out a list of its strenghts and weaknesses in the incapacity domain. Portrait des besoins et des services : Les personnes ayant des incapacités dans la région des Laurentides (Laboratoire de recherche sur les pratiques et les politiques sociales (LAREPPS) et Université du Québec à Montréal, 2004)
AbstractThis french document draws a picture of the supply and demand of public and community services available for the disabled people in Laurentides in Quebec's province. This regional overview makes out a list of its strenghts and weaknesses in the incapacity domain. Portrait des besoins et des services : Les personnes ayant des incapacités dans la région de la Montérégie (Laboratoire de recherche sur les pratiques et les politiques sociales (LAREPPS) et Université du Québec à Montréal, 2004)
AbstractThis french document draws a picture of the supply and demand of public and community services available for the disabled people in Montérégie in Quebec's province. This regional overview makes out a list of its strenghts and weaknesses in the incapacity domain. Commentaires sur la Loi sur l'assurance parentale et projet de réglement sur l'assurance parentale (Office des personnes handicapées du Québec (OPHQ) (2000))
AbstractThis is an OPHQ commentary on the third part of the Quebec's government family policy. This statement paper that supports the project but explains that the government's Bill should be more compatible with families that have a disabled member. The document proposes some solutions to accomodate those cases. Government DocumentsMinisters of Social Services MeetingQuestion and Answer Fact Sheet The Impact of Block Funding on Women with Disabilities(Status of Women Canada, 1998) Lessons Learned from Evaluation of Disability Policy and Programs, "Chapter 6: Independent Living and Community Support Services"(Burt Perrin Associates for Evaluation Services, Evaluation and Data Development, 1999) AbstractThis entire document covers a variety of policy and program areas impacting people with disabilities. It evaluates the effectiveness and gaps in services, policies and programs. Chapter 6 looks specifically at community support services in Canada it discusses some of the relevant evidence, and indicates what is known about which types of approaches appear to be most effective. ‘Supports’ are seen to belong to either of two categories; attendant care or more traditional home care services, including professional services such as nursing and non-professional services such as homemaking assistance. The chapter looks at the goals of the various services under these two categories, the models of disability they are influenced by and trends in support services today. Family Support for Children with Disabilities Policy and Procedures ManualProvince of Alberta’s Children’s Services AbstractThis manual contains Alberta’s Family Support for Children with Disabilities (FSCD) Act; a reprint of each section of the Regulation; Explanations of the intent of each section of the Regulation; Policy Statements; Procedural Steps; Forms for each procedure is identified for easy access; Family Support for Children with Disabilities Information System (FSCDIS). A New Vision for Community Living: A Vision of Choice and ChangeCommunity Living Transition Steering Committee AbstractThis document is the final report of British Columbia’s Community Living Transition Steering Committee which was a collaboration between government and the community including self advocates, service providers and government representatives. This report outlines recommendations and their rationales on how to transform the current system of disability supports in British Columbia from a service model to a world centred on support as a means to full citizenship and the opportunity for people with disabilities to contribute to their communities. Re/Working Benefits: Continuation of Non-Cash Benefits Support for Single Mothers and Disabled Women(Status of Women Canada, 2003) AbstractPeople with disabilities are eligible for social assistance including both monetary support for living costs and non-cash benefits to cover additional expenses related to being disabled. Single mothers who qualify are also eligible for an income support allowance and additional benefits, such as child-care or transportation subsidies. This research project proposed that, for many women on welfare, the cost of working was too expensive given the loss of all non-cash benefits. Women with disabilities and single mothers were asked about the importance of non-cash benefits and what would help them to return to the work force. Disabled women and single mothers are often trapped by the important benefits that are only available while in receipt of income assistance. Some women would be able to earn the equivalent in a month but could never cover the additional costs of child care, transportation and housing. Using focus groups and data analysis, this report summarizes some of the non-cash benefits that could and should be available to women leaving the income support of welfare and joining the work force. Since the Canadian Health and Social Transfer replaced the Canada Assistance Plan, provinces have been given a range of options for spending money and administering programs. Dramatic policy changes occurred in British Columbia toward the end of the research that we think foreshadow problems to come in other provinces and, thus, we recommend that provinces take our analysis into consideration. British Columbia may now serve as a different kind of model for policy makers. Current Disability Issues in Canada: A Background PaperThe Sub-Committee on the Status of Persons with Disabilities AbstractThe availability, portability and mobility of supports for people with disabilities have been identified as critical by the disability community and by federal/provincial/territorial governments, as well as by health and social services providers. This article explores the current landscape of disability supports in Canada. Disability Supports in Canada, 2001Statistics Canada AbstractThis article is the second in a series of releases of data from the 2001 Participation and Activity Limitation Survey (PALS). This article presents data on the various support measures for adults (persons aged 15 and over) with disabilities. The themes included in this document are specialized equipment, help needed for everyday activities, dwelling modifications, local and long distance transportation, and tax credits. The first survey results were published in December 2002 in an article containing findings on the prevalence, type and severity of disabilities by age and sex. Prince Edward Island Health and Social ServicesPrince Edward Island Disability Support Handbook AbstractThis handbook gives information regarding the implementation of disability supports program in PEI. The program provides support in three areas: Child Disability Supports, Adult Disability Supports and Employment and Vocational Supports. De l'intégration sociale à la participation. Politique de soutien au personnes présentant une déficience intellectuelle, à leurs familles et aux autres proches. (Gouvernement du Québec, Ministère de la Santé et des Services Sociaux, 2001)
AbstractThis politic presents the details of the services that intellectual disabled people and their family should receive from the Quebec's health and social services network. They should be offered in order to offer and maintain a decent quality of life to promote social participation. Chez soi: Le premier choix : La politique de soutien à domicile (Gouvernement du Québec, Ministère de la Santé et des Services Sociaux, 2003)
AbstractThis booklet presents the policy of assisted housing of the Quebec's governement until 2008 and explains how these types of services must be harmonized with all of the other services to maintain and ameliorate social integration of the disabled people. Out of the shadows at last: Transforming mental health, mental illness and addiction services in Canada.(The Standing Senate Committee on Social Affairs, Science and Technology, May 2006) AbstractThis document is the end product of a three year study by the Standing Senate Committee on Social Affairs, Science and Technology, headed by Michael J.L. Kirby. Commonly referred to as the Kirby report. this study investigates the state of the mental health services in Canada. The stories and perspectives of people with mental illnesses are included in the analysis. The document makes 118 concrete recommendations, many of which are currently being considered and debated by various levels of government. The most notable recommendation is the call for the creation of a Canadian Mental Health Commission, a 10-year department which will oversee the implementation of the other recommendations. How to be H.I.P.P. (Have Influence on Public Policy)(YMCA Canada and Human Resources Development Canada) AbstractThis document is designed to help voluntary organizations learn how to effectively influence public policy in Canada. The document covers the basics of policy, including a glossary, a section on understanding government, and information on the Canadian policy process. There is also a practical 8-step action plan and a "dos and don'ts" section for advocacy work. |
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